Sometimes looking at just the pictures helps our brains deal with concepts. <3 -Sue
WHAT IS A MULTI-SYSTEM DISEASE
A multi-system disease affects multiple systems at once in your body. Here are some examples that can co-occur with Amyloidosis.
Heart problems
Kidney problems
Liver problems
Spleen problems
Autonomic nerve problems
Nerve pain or misfiring
Digestive tract motility problems
Feeling very tired or weak
Losing weight without trying to
Shortness of breath
Lightheadedness/drop in blood pressure while exercising
Swollen feet or legs
Bruising around your eye
(Source: Mayo Clinic)
Living with hATTR
There is no current cure for Amyloidosis. But in the last 9 years there are significant advancements in NEW medications that can slow the disease down, and change the story.
We believe that living with hATTR = living with hope.
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ABOUT THE AUTHOR
My name is Sue Skavlem.
I'm a visual messenger – not a doctor.*
My husband has Amyloidosis. And it took me a year of googling to understand what an "adult-onset multi-system genetic disease" was.
After learning that "Amyloids have the tensile strength of steel", I came up with the "Accumulating BBs Theory."
My hope is to promote awareness of the disease, update our friends & family on our journey, and create resources other families with hATTR can use.
*Information in this article is meant to inform, but is not medically reviewed, nor should it be used to self-diagnose. Please talk with a medical doctor about free genetic testing if you or a loved one may have hereditary Amyloidosis.
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